The Roots of Autoimmune Crisis (My updated story of Lupus and Lyme)

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For those of you following my healing journey, here’s an update. For those of you here for the first time? Welcome to a conversation of HOPE.


A little over a year ago, I asked if it was possible to heal autoimmune disease naturally? I believed then (and believe now) that it IS and that our mainstream institutionalized medical system is largely hampering our efforts. Not only that, but the constant ingestion of damaging pharmaceutical medications are often making us sicker, not better.

An award-winning rheumatologist once patted me on the bum and told me that my suffering was just a lack of sleep. I cried all the way home and paid him $600 out of pocket for his trouble. He was wrong, but that knowledge doesn’t repair the price paid in mind, body, and bank account.

I acknowledge that modern medicine is a great gift and saves countless lives every year. That is not at issue. My problem is with the lives it often needlessly exploits and damages when better resources are readily available but suppressed by a broken system.


THE PROBLEM OF LUPUS

I have Lupus and mainstream medicine tells me that Lupus is an incurable autoimmune disease. The primary care specialist for most Lupus patients is a rheumatologist, and almost all rheumatologists treat Lupus symptoms with drugs that cause short and long term damage to the body in exchange for temporary relief and hope.

Those meds sometimes save a life when an organ is under concentrated attack by friendly fire. But like cancer meds, these life saving protocols do come with a price tag. I often wonder whether the cure is killing Lupus patients faster than their disease.

I’ve spent a lot of time listening to Lupus sufferers talk about their problems. There comes a point (rather quickly) at which the suffering of the disease becomes almost indistinguishable from the suffering caused by the  medication.

I didn’t want to go down that road and so I asked questions…

  • WHY is my immune system attacking my own organs?

  • How can I get it to stop without shutting down my immune system with meds?

What I learned from daily research is that the body is an awe-inspiring creation and that it does not fire on itself without a reason. I knew that if I could find that root cause, I could find some degree of healing. I will always have the dysfunctional antibodies with me but they don’t always have to be active and triggered. So…

What is triggering my antibodies to attack normal healthy cells?

That’s the million dollar question and I poured a boatload of money into integrative medical professionals and testing in order to find out. Money well spent, I believe.


FUNCTIONAL MEDICINE

I was a model patient walking in the door because I had already laid the foundation for good health over the last 6-7 years which they recommend for every sick person they treat…

  • I eat a diet free of garbage and inflammatory ingredients. (See how I eat HERE)

  • I don’t take OTC or pharma meds without a truly grave reason.

  • I live a healthy lifestyle free of alcohol, tobacco, and other toxic substances.

  • I have a healthy weight and strive to stay active and minimize stress.

  • I use gentle plant-based medicine and supplements to treat symptoms and support my body (More info HERE)

  • I use personal and household products which do not poison my body

I was managing symptoms and disease (multiple autoimmune diseases) through a healthy lifestyle when so many others were becoming dependent on and trapped in a cycle of medication and misery. Some necessarily. Some because they were NEVER OFFERED AN OPTION.

In spite of all of this and in spite of tremendous healing and progress…

My autoimmune flare ups kept coming back, my neurologic issues continued to surface, neuropathy increased, and new problems were added to the mix. When my thyroid numbers went off track for the first time, I got angry…

I am collecting autoimmune diseases. If I don’t get a handle on this, I’m going to die young or become disabled. I’ve got 8 kids… I’m not going to give up the fight.

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LEFT: Me, during a flare. Swelling, hair loss, malar rash, severe pain, numbness, extreme fatigue, nausea, migraines, respiratory problems, heart arrhythmias, sun intolerance, heightened allergic response, food intolerance, joint degeneration, etc.

RIGHT: Also me… walking the line between health and illness.
It’s a dimly lit photo so the light was favorable to my lines but… I usually look somewhere between these two photos. This illustrates the extremes to give a better understanding of the middle ground. My face often indicates (even in small ways) what the rest of my body feels like, although it’s generally invisible to others. Chronic illness always falls somewhere on a range of wellness. It’s generally not as simple as “I am sick today” or “I am not sick today.”


So we started shelling out the money to get tested for root causes of systemic inflammation and antibody production. Those triggers generally fall into one of the following categories:

  • Infections (bacterial, fungal, viral, SIBO)

  • Heavy metal toxicity

  • Leaky gut

  • Parasites

  • Toxic mold

  • Chronic stress (which leads to leaky gut and chronic inflammation and dysfunction)

  • Environmental toxins

  • Nutritional deficiencies

  • Pharma, OTC medications, and Vaccines (Don’t freak out, people. These are actually medically known triggers of Lupus. 10% of all cases, in fact, and I’m going to guess that’s a low number since it’s often impossible to identify a cause.)

(I’m going to mini-rant now about how insurance companies will cover brutally toxic meds that only mask symptoms but will NOT cover tests for most of the above. In my case, it was worth the money but it’s been a painful drain on my family’s resources. Financial concern has often kept me from pursuing care. We need a change in the system…. so that patient care is dictated by true patient needs and evidence-based choices, not pharmaceutical companies. Rant over.)


YOU HAVE LYME DISEASE

One of the happiest days of this journey was when I finally learned that the underlying cause of my lifelong autoimmune cascade is Lyme Disease. It was also one of the most crushing days. I am happy to have identified an enemy. But Lyme Disease, with all of it’s complicated co-infections and dastardly elements… well… it’s not the enemy I would have chosen to fight. The initial news brought relief. The days that followed brought confusion and grief.

Regardless, I now have a target and I’m ready to fight.

My case is what is called “complicated” Lyme. The translation is that the professionals don’t really how to help me. In addition to Lyme, I have CIRS, and hypothyroid (new within the last year). I have a body full of disorder and they don’t know what they are fighting, where it is, and which medical options will help without making my situation worse.

For example, certain antibiotics MIGHT kill certain bacteria but WILL cause other bad actors to flourish. Other medications WILL cause a die off of certain bacteria but will also cause the body to become overloaded with toxins and also harm the immune system. Some antibiotics WILL kill SOME microbes but it will cause others to strengthen their defenses....

I don’t have the time or the money for this. Who does?

Protocols talk about alternating and “pulsing” meds to try to help patients without damaging them. They talk about all kinds of things that cause me to alternately hope and cry.

I am faced with a decision: which path will I choose to attack this enemy which has been setting up camp in my body since I was a child? Every single doc has a different approach (because it’s a bit of guessing game) and I’m left with one more question…


IS THERE ANOTHER WAY?

I often run across research showing how certain natural substances destroy cystic Lyme, eat through biofilm, disrupt the inflammatory process, and do things generally better than antibiotics. I have experienced the direct and measurable impact of plant-based medicine and so it’s easy for me to believe from experience (and the science I’m reading) that these things are true. And I’m not going to complain (too much) about how the system is still handcuffed to what Big Pharma is doing and ignores everything else because…

I’m moving on.

My journey from this point is going to be research-based and pharma-be-darned. I will use them when it makes sense but otherwise, will be using an approach which honors the dignity and design of every single cell in my God-given body.

I’m not giving medical advice here. I’m just fighting for my own life and health. If you follow anything at all that I say, you have to do it based on your own belief that it is best for your body and not because I say so. Be your own advocate. Learn about your body and what it needs. Demand evidence-based care and full disclosure of medical procedures, medications, and all possible risks (informed consent).


THE HEART OF THE MATTER

Lyme infections have been around for longer than recorded history and the human body is designed to handle them. It is not the bacteria itself which has suddenly gone rogue, but cultural practices (nutrition, toxic environments, unnecessary medications) that are systematically undermining our naturally efficient immune response. 

Our bodies are not broken by design, to be overrun by every common tick bite. Something has gone wrong. 


WHERE I GO FROM HERE

My internet dialogue (website and social media) will primarily focus on what lifestyle choices I make in order to keep my body in fighting shape. I earnestly believe that for many of you, those changes will be enough to alter your life for the better in ways you never dreamed possible...

  • Nutrition.

  • Exercise.

  • Managing stress levels.

  • Sleep.

  • Eliminating toxins/poisons in your products, food, environment.

  • Informed self-care.

While I continue to navigate this road, I will continue to share natural wellness, nutrition, and essential oils with everyone I meet. I will also continue to write and share and work on larger products (TBA), and to immerse myself in my family life.

Life is short and I’m not going to lie; during a bad flare, I think about death a lot. What I bring here is a pouring forth of NO-REGRET health care.

“No-regret health care” means that I’m not going to compromise the gift of my bodily health in order to hoard time and grasp at pain-free living. Neither is possible. We are designed to pour out our lives in loving service with joy and holy boldness, keeping in mind always that we are not made for this world.

I have one shot with this body. I have one shot to teach my children about how we are to approach this gift. One chance to do my part to restore proper order to the way we live and care for the body as believers. Because it does matter and is the appropriate response to the gratitude we feel for life itself.

Welcome to my ongoing effort to honor the gift, utilize God’s plan for healing, and lay it down in service.

Thanks be to God!

A Catholic Perspective on Essential Oils (A Skeptic Confesses)

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The first time I heard a friend talking about essential oils I confess that I pretty much tuned her out. She might as well have told me that she was using crystals to heal her broken aura while burning sage smudge sticks for the shaman. My head nodded politely but I was probably thinking about dinner... or wallpaper... or something.

My dear cherished friend... I am very sorry.

Up to that point, my experience with "natural" healing came primarily from my familiarity with New Age enthusiasts who made up the majority of the stereotypical alternative medicine crowd that I knew. And when I walked away from that environment to embrace my Catholic faith, I walked away from everything that I associated with them. Take your patchouli incense and yoga and go find your reincarnated Buddha... I want none of it!

I needed that distance at the time. I needed the clarity. But ultimately, I discovered that in multiple respects, I had thrown the proverbial baby out with the bathwater. 

Does that mean that I embrace all of the accessories of the New Age natural healing movement? No...

I'm saying that the natural world belonged to God first... And that I am seeing things rightly ordered for the first time. If something is good, true, and beautiful, it isn't freaky or nutty... It's wholesome and designed to support us in our vocation in the service of God.

Yes, I threw out the crystals, the spiritual yoga, and the Buddha. But there have been a few things that I have reclaimed as a Christ-follower, understanding with a clearer vision that their goodness is a gift. 

One of those gifts is essential oils.

THE SKEPTIC

I am a skeptic. A questioner. I also have baggage that exacerbates that tendency when it comes to the healing arts. So coming to terms with essential oils has been a mountain climb. Here is what finally convinced me...

THE SCIENCE

We know experientially that the natural world provides real solutions to illness and disease. We love the smells of nature and buy the products that feature them. We walk in beautiful places because we instinctively know that it is good for mind, body, and soul. We breathe it in, feel it on our skin, and bring it into our homes. We slather stuff all over our bodies until we smell like walking orchards and flower gardens.

Whole industries have grown out of our desire to be smelly like things that grow from the earth and to heal our bodies with the same. We crave it. We literally salivate over the smell of cookies. We boil cinnamon and cloves to feel festive and happy. 

What we also know is that the data supports our intuition...

Oregano, for example, has anti-bacterial and anti-fungal properties which can be demonstrated in a lab. We know also from clinical studies that frankincense oil has the ability to penetrate the blood/brain barrier and has a supportive impact on cellular health. Orange oil has anti-inflammatory properties and acts as a kind of anti-depressant by stimulating the senses. What we forget, however, is that these benefits aren't restricted to a scientific lab... but available to anyone with access to these potent plant compounds.

WHAT ARE ESSENTIAL OILS?

Pure essential oils are simply distilled plant compounds; potent, concentrated, and straight from God's creation. Their molecular structure allows them unique access to our bodies at a cellular level. There's nothing freaky, nutty, or unexpected about that. God's intelligence and benevolence is made manifest throughout all of creation. 

PERSONAL EXPERIENCE

For those who have followed my journey through sickness and health, you know how seriously I have had to take this discussion. Out of real necessity, I have looked beyond traditional medicine for help and found it through nutrition, movement, and environmental changes. One of those changes has been the use of essential oils. 

Remember... I'm a skeptic. I don't throw plant compounds on my body or into my environment without tons of research and when I use them, I use with care. But I can't deny it...

My body responds to essential oils. 

God is good. He loves us. He provides for us. He gave us amazing, beautiful bodies, the materials of the earth to serve those bodies, and the intelligence to use them. That applies to natural as well as traditional medicine. They both have a place. 

(Even patchouli has a place, by the way. But if you're ever tempted to buy it for me... just... don't. My sensory memory will throw an ugly fit.)

THE CATHOLIC SIDE

The natural world belongs to God. He is master of all creation and just because non-believers use a plant or move their bodies in a non-sacred way, does not make them master over those things.

Catholicism, more than any other religion, recognizes the beautiful integration of mind, body, and soul. We are charged with the care of our bodies and the earth and it is entirely consistent with who we are as Christians to recognize the gifts inherent in the created world. 

The Church herself uses oils. At the Chrism Mass on Holy Thursday, her bishops bless them for use throughout the year. They fill our sensory memories, carry symbolic significance, and are used as sacramentals. After our babies are baptized, we breathe in the balsam that was touched to them and regret that we ever have to wash it away! Frankincense has long been used in liturgical celebrations and was even given to Our Blessed Lord as an earthly gift, and was considered at the time to be a medicinal treasure.

We do not worship the created over the Creator... but neither can we wholly remove the gift from the Giver. 

INTELLIGENT USE

Essential oils are potent. I would never advise using them without proper knowledge and care. It's not complicated but does take a certain amount of awareness. Like any tool, they can be misused. I dilute my oils so that they are safe enough even for the kids in my family. I research and keep charts on hand to make sure that I'm using each unique oil in the proper way.  

I was probably more surprised than anyone when my interest led me to earn my certification as an aromatherapist. And what I found through that training is what I had already learned through my own experience: that essential oils are an affordable, safe, and effective health care option.

AT THE END OF THE DAY...

... you don't have to use essential oils to be a whole and healthy Catholic person. They are simply another tool in the wellness tool box. Your use or non-use doesn't divide us. Using them doesn't put you in a particular camp of health nuts or crunchy Catholics. Nor does not using them make you less a good steward of your body. But...

It is good to know that there is nothing inconsistent about natural health options and a strong life of faith. God's creation is magnificent. Thanks be to God!


WHY I SHARE

Two reasons... and I'm going to be completely transparent...

  1. I can't NOT share. Just like with the rest of my health journey, I feel compelled to reach out to others with my story of renewal and healing. It drives me past my shallow concern over what people will think. But I will say it a million times more if it reaches just one person:

    When I was 35, I sincerely thought I was going to be in a wheelchair by the time I was 40. I was that sick. I am now 41 and nowhere near that wheelchair. Doctors couldn't help me. But I changed my diet, my lifestyle, my environment... and God gave me new life with which to serve.

    I want that for other people. So many are suffering. Maybe someone out there will benefit from my story.

  2. I did a lot of research before choosing a company. And truthfully, I left one popular essential oil company because I was not happy with the integrity of the leadership or the quality of the oils. It was uncomfortable. But my first priority is to my God, my vocation, my family, my health... not to a company or to my friends. Since I have to purchase from somewhere, I still had to find a source... and I did choose one that seemed more in line with my priorities than the others. I have decided that I can stand behind these essential oils enough to become a Wellness Advocate with doTERRA. That means that I get to bless my family by doing what I would already be doing: Sharing wellness.

So many of us are sick, hurting, exhausted, seeking joy amidst the physical struggle, and having a hard time staying afloat. Essential oils are not a magic cure... but they can be another means of supporting our amazing bodies. God is good.

WANT TO KNOW MORE?

If you are interested in learning more, just contact me HERE or start at the link below... "Why Essential Oils?" 

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Orthorexia: The Red Herring of the Oreo-rexic Internet

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The woman had a deeply concerned expression on her face as she looked me up and down. She was a fellow swim mom and we'd been friendly for a couple of years, and she'd been watching while I ran around the gym with the kids at a team Christmas party. I was feeling better than I had in a while, smiling and a little winded as I approached the food tables where she was sitting.

I noticed her frown right away and then was knocked flat by her words... 

"Are you okay? I mean... you just don't look well. I'm concerned about you. You're so... thin."

I was thin. And I wasn't particularly well. The only thing my stomach could tolerate was mushy Special K cereal and I was dog tired. My belt was pulled to the tightest notch but I had been feeling okay that day. In fact, I had been feeling pretty good. Until she opened her mouth.

My problem was undiagnosed autoimmune disease but I didn't know... and she didn't know my suffering. On the surface I just looked skinny, I guess.

I had no idea what to say but I felt the back of my eyes start to burn with tears and some mean words threatened to pour forth in a hot second. I wanted to comment on the chocolate-covered Oreo in her hand and her recently expanded girth.

But I didn't. I just... died a little on the inside.

I didn't have anything left. I felt sick, tired, ugly, and hopeless. She won. I don't know what the prize is in that situation but she won it. I was defeated.

Several years later, I experienced a great healing through a dietary transformation. And wouldn't you know it, that woman (or rather her internet counterparts) took right up where she left off... winning the battle over minds with ignorance and phony concern, but for no good purpose.

The new food shaming battle cry? Orthorexia.

Orthorexia is defined as obsessive behavior in pursuit of a healthy diet. Welcome to the latest trend in diagnosing the confidence out of every human being we don't know or understand. Several of the common symptoms can be loosely applied to countless mentally healthy people, including myself... but the topic is pay dirt for writers and fodder for the vultures... so it continues.

I can no longer decline a dessert at a gathering without someone questioning my mental health. Awesome.

I looked up the symptoms of Orthorexia as defined by a clinic that deals with eating disorders. While I absolutely believe that there can be a serious mental health disorder defined as orthorexia, I think the internet in general is using the term all wrong. 

Let's look at what criteria I found on a professional mental health website...


"A person with orthorexia will be obsessed with defining and maintaining the perfect diet, rather than an ideal weight."

This one confused me because I wouldn't call myself "obsessed" but I am pretty serious about maintaining the diet that keeps me free of pain and sickness. The alternative is horrible so, I don't know, maybe some professional would call me obsessive? I'd rather go without a meal than eat something that causes my body to attack itself. Call me crazy. And maybe you would. 

I admit that having a great diet feels terrific and I really don't have to worry about my weight at all. It's one of the most freeing experiences to simply not have to worry about cutting off my broccoli intake or feeling like I ate an inflatable brick following a donut binge. If that makes me mentally ill... I'll take it?


"She will fixate on eating foods that give her a feeling of being pure and healthy."

Oh wow... I'm so busted. Totally orthorexic. Let's see... I eat multiple times a day and have to plan for those meals, prep, cook, and eat them, and clean up after them. Plus shopping and snacks. I'm pretty fixated. But probably not as fixated as I used to be on cookies... Oreos in particular. 


"An orthorexic may avoid numerous foods, including those made with: 

  • Artificial colors, flavors or preservatives
  • Pesticides or genetic modification
  • Fat, sugar or salt
  • Animal or dairy products
  • Other ingredients considered to be unhealthy"

Busted again! I avoid all of those things except healthy fats (of which I consume a large amount), salt, and meat. But yes, I avoid unhealthy foods. Is that really one of the criteria for diagnosing mental illness?


"Obsessive concern over the relationship between food choices and health concerns such as asthma, digestive problems, low mood, anxiety or allergies"

I think that word "obsessive" needs to be defined clearly because there are some people who would probably call careful behavior "obsessive" and others who have a totally different picture in mind. Depending on the definition, this could apply to me. If I go by a clinical definition, then no... I'm not obsessive. But if I read this within the very loose context of criteria used by these professionals, then yes, I suppose I come awfully close. 

My health conditions can be debilitating and even potentially fatal. I am strongly interested in the relationship of food to my healing process and... 

I really couldn't care less if that bothers an internet therapist.


"Increasing avoidance of foods because of food allergies, without medical advice"

Because if a food makes me sick, I should keep eating it unless a medical professional tells me not to? That's just stupid talk. I'm not even going to get into the 15 years that I was failed by countless medical professionals (including allergists). I sought and paid for tons of medical advice and learned one important thing along the way that they never told me...

If it makes you sick, don't eat it. 


"Noticeable increase in consumption of supplements, herbal remedies or probiotics"

The majority of American adults take supplements regularly. It's a $40 billion dollar industry. So at least we are all in this together. 


"Drastic reduction in opinions of acceptable food choices, such that the sufferer may eventually consume fewer than 10 foods"

This can be tricky, especially at the beginning of a dietary overhaul when a person's body is reacting in an inflammatory way to everything and there is an uncertainty about what is okay to eat and what will bring on symptoms. 

At my sickest point, I was not eating more than 10 foods and it took some time for my stomach to be able to tolerate more. I was not mentally ill but I was very physically ill and the number of foods I was consuming was a symptom of the problem, not the problem itself.

It took a while to figure it out and to heal. 

So I don’t agree this is always a helpful assessment of mental illness. Circumstances vary greatly. Show me the average American diet and I will show you countless people who have a very limited palate. Does that make them mentally ill? Probably not... it likely means they have a crappy diet. 


My point is that you cannot make an accurate health assessment of another human being from an internet article, nor should you try. 

I don’t understand the motivation behind some of the hate, although I think I do understand a little based on the articles' contents and comments. People who are deeply interested in outing others as orthorexic usually fall into one of the following categories: 

  • They tried to change their diet but were unable to stick to it
  • Feel defensive about the food they feed their families if it's not very healthy
  • Tried a dietary change for health reasons and found it unhelpful
  • Are afraid that they won’t be able to eat Oreos in public without criticism
  • Can't afford to eat what the real-food experts are peddling.  
  • Know someone who annoys them with their disruptively healthy eating and wants to change them 
  • Have a real concern about someone they love who is exhibiting symptoms of obsessive compulsive behaviors and real mental illness that interferes with health and relationships. 

Using the criteria I shared earlier, you could certainly say that I might be orthorexic. You’d be wrong but the internet has a way of making people experts over other people’s health so...

What I’m waiting for is the list of criteria to internet-diagnose someone with Oreo-rexia; defined as obsessive behavior that interferes with the desire for a healthy diet. 

Symptoms include: 

  • Eating ice cream with a spoon straight from the carton. 
  • Bullying good friends into eating junk food with you even though you know they are on a diet.
  • Eating dessert food (including caramel lattes) more than once a day. 
  • Shaming sick people into giving up their pursuit of healing food by implying that they are mentally ill. 

Of course we know that Oreo-rexia is just a word I made up to make a point. And orthorexia, while apparently a real illness, is often used by armchair mental health professionals to make their own point. But... 

It's a red herring... a distraction from the real issue... which is that the trends toward healthy eating make people uncomfortable and upset. 

"Others eat in a way that I don't understand, agree with, or find necessary in my life... and it's suddenly become very important to me to identify people with a mental illness called orthorexia." 

Either that or those clickbait articles simply pay the bills. 

Do humanity a favor today and encourage someone who is trying to make healthy changes in their life. And don't make it contingent upon your feelings. It would make me feel amazing to be able to eat a bunch of Oreos without thinking about anything other than calories. 

I understand that you don't get it. 
I understand why.
I forgive you for the wounds you unknowingly inflict.
But... I also ask you to stop. 

 

 

The Simple Path to Healing in a Complicated World

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It sometimes seems that taking care of myself (mind, body, soul) is an impossible task; one that requires the equivalent of a college education to navigate...

I sat at my desk with my head in my arms, bawling like a baby. It had been a tough week. My autoimmune disease had flared and and I was looking for a little relief and distraction on the internet from my favorite healthy lifestyle gurus. My feed was full of natural wellness awesomeness and I had been taking notes for 15 minutes with a frantic sort of energy. And then... I just fell apart. 

Bawled like a baby until my nose ran, completely overwhelmed.

 What I really needed was a good long nap, someone to give me a back rub, a personal chef, a date with my husband, and a cure for lupus. I would have settled for the nap but was instead overcome by the multiplication of digital images of infrared saunas, squatty potties, and 1001 ways to use bone broth. I'm not opposed to those things necessarily, but on that particular day...

I just needed one helpful thing. And I didn't even know which one it was.

Too tired to care and too upset to continue, I closed my laptop and cried it out for a bit; and then lay down on my bed in spite of the fact that it was only Noon and I had 52 urgent obligations weighing on me. 

It turns out that a nap was the one thing I need right then. Because sometimes the simplest path to healing in the moment is truly... the simplest thing.

When I got up again, I forced myself to take other simple actions: I took my supplements and make a quick healthy lunch. I did all the things that mothers do and then sat down here to type out a few thoughts about this exciting/horrible journey of chronic illness. 

Are you overwhelmed, too? 

I want you to know that I understand where you are at (in a general way, not a specific way) and I'm sorry if I've ever overwhelmed you in my enthusiasm and pursuit of healing. We all want to give good and healing things to people so that they can feel well again. And I want to give you every gift and blessing which I have received. 

I want to give you good nutrition.
I want to give you rest.
I want to give you a reprieve from stress, depression, and anxiety.
I want to protect you from toxic overload.
I want to to bless you with natural health care like essential oils.

But I also want to honor your pace and hold the door open for you while you take that badly needed nap. 

I don't want to be anyone's guru. 

I want to be a sister on the journey, who loves you enough to share the good stuff in life and a word of encouragement. 

Whenever I experience an overwhelming day when my body just doesn't seem to care how much effort and resources I'm pouring into it's care, I go back to basics. One thing at a time. One meal at a time. One supplement at a time. One walk, nap, prayer, song at a time.

Here are some snapshots of what simple looks like to me (borrowed from my Instagram and Facebook pages)...

My kids jokingly call my autoimmune face swelling "lupus botox." I sometimes mentally call it other things that I won't print here. But I'm finding the more I share the little daily struggles, the more others are encouraged, and the less frustrated I am by these details. I'm not as shocked and afraid by a puffy face, for example. And somehow... it gives me courage to own it... and recommit to healing...

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When I am overwhelmed by all the health options out there, I fall back on nutrition, supplements, rest, and essential oils. That's pretty much all my body will tolerate. No exercise, no make-up, no pushing through big obligations. Just basics...

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When I pull back from life a bit and go big with saying NO to everything that doesn't heal, I sometimes find a surprise tiny window of creative energy. My time is normally divided (by 8 kids, a husband, a homeschool, and a business) and I have lingering feelings of guilt no matter what I do... because something is always being ignored. But when I am sick... the guilt dissipates because I have no control. I know I can just enter into the ONE thing I'm doing in the moment without guilt or divided attention.

Stress is a health killer... so freaking out about being sick is counterproductive. I am learning to fully let go for that time and I'm finding that the less stressed out I am about it, the shorter the flares are. 

A health crisis is sometimes the permission that I need to slowly make a big batch of my favorite healthy mashed sweet potatoes with bacon, while sitting and chatting with the kids about everything, anything, and nothing. 

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Sometimes, I just do nothing but rest while my obligations pass me by. During times of more severe illness, a hush kind of comes over my mind and soul. After the anger and the fear (which seem to come without fail), the consolation of the "hush" comes. And it is then that I realize how unimportant 90% of everything I busy myself with truly is in the light of eternity... and how God allows illness to be a gift to the soul that desires to be close to Him. 

I recently listened to a fantastic talk recently about autoimmune disease given by Dr. David Perlmutter (I think... my memory is not absolute on that but he's still a great guy). In the talk, he spoke to the slow progress of healing in a body broken by disease. He reassured the listener that healing comes over time and that it is the small steps each day which will add up.

Just like it was the small choices before which put so many of us in a state of inflammation and disease.

It's not necessarily our fault that we are suffering now, but we do have a measure of control over our healing by the ways we choose to support our bodies. And if we have any input at all into the well being of our bodies, minds, and souls, it is going to be in doing the one thing in the moment over a long period of time that makes all the difference...

Slow.
Steady.
Simple. 

At the heart of all good internet guru websites, articles, and programs is this simple way of making small, positive changes one step at a time. When you are feeling overwhelmed, just break it down all over again to the most important elements and then...

Go take a nap. 

P.S. I know you can't always take a nap (am I right, moms?)... it's just a manner of speaking about the simplest thing in the moment. But my advice is to never shun that particular window of opportunity if you can find it!

What is your favorite "simple" way to promote healing? 

Healing Autoimmune Disease Naturally: Is it Possible?

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Whether or not Lupus (or any autoimmune disease) can be healed naturally has become an important question in my life. After suffering for two decades with chronic illness and actively seeking answers for the majority of that time, I finally have a diagnosis of Lupus. Diagnosis is a complicated thing; it is both a relief and a burden. In my case, it brings the undesirable news that I have an incurable disease in which my body attacks its own major organs and joints.

Bummer.

Until the 1950's, prognosis for someone with Lupus was grim, but medical advancements have greatly extended the lifespan of the average person with the condition. The "medical advancements" of which I speak are primarily medications which suppress the immune system; medications such as chemotherapy and steroids. 

I've spent many hours hanging out in the internet Lupus forums, and discussions are as often about how to deal with the negative side effects of the medications as they are how to deal with the original Lupus symptoms. That is the double edged sword of all pharmaceuticals: They are a tremendous blessing when we need an intervention that a natural resource cannot provide; but they can also become a terrible burden, giving us a new set of sufferings in exchange for the old ones. 

MEDICATIONS CAN'T HEAL THE BODY

The truth is that prescription drugs cannot heal us. Healing can only come from the body itself. The body dies when it can no longer protect and restore cells and body systems with or without assistance from pharmaceutical and natural resources. Prescription drugs cannot heal us if the body cannot, at some point, pick up the burden and continue healing and fighting on it's own.

A great example of a complicated pharmaceutical is antibiotics. We have a false notion that these little pills will kill an infection in its entirety and we can just sit back and let it happen to us and life in our body will go on as usual. The reality is that if our immune system doesn't ever engage the infection alongside the antibiotics, we will die. 

Antibiotics are a great example of the non-specific nature of prescription drugs. While they stop infection, they are not discerning and also kill off the good bacteria which live in the gut and comprise the majority (70%) of the body's immunity. It starts to get complicated. And in our desire to heal, we decrease our body's natural ability to do so. 

Our participation in that healing is often passive and even interfering. We proceed with our unhealthy habits and can't understand why the meds don't "work" the first time around... Or why our chronic cough/sinus infections/etc seem to continuously plague us.

THE NATURAL SOLUTION

The natural solution is not necessarily easy but it is a simple concept. It says: "I will focus on strengthening my body systems according to nature's design in order to protect against and battle disease." Even if we must take medications to survive, it is foolishness to ignore the basic needs of the body.

So... While I don't know that I can "cure" my Lupus, I do believe that I can manage my symptoms to some degree by honoring the fundamental biologic needs of my body. I believe it first because I have done it. I believe it also because science and research confirms that experience.

I have been managing quite well for the last 6 years (pre-diagnosis) with nutritional changes alone until recently when I experienced a lengthy flare which I could not fully control. On some level, I knew it was coming. I had been telling myself for months that I needed to stop my increasingly frequent sugar splurges... and I was conscious of carrying a stress load far too heavy for me. I also had stopped supplementing regularly just out of pure laziness. When the flare hit, I immediately cleaned up my diet, decreased my obligations, increased my sleep, expanded my essential oil use, and started my supplements again. I believe those things (along with other natural wellness resources) kept me out of the hospital. 

MOVING FORWARD

I once believed I was headed for life in a wheelchair and in ONE WEEK of dramatic dietary overhaul was able to change that trajectory. If I was able to do that only by eliminating toxic garbage from my diet, I feel confident that I can make further strides with greater application of a healthy lifestyle. 

By "healthy" lifestyle, I mean one in which I am addressing (naturally) the following factors:

  1. Nutrition

  2. Stress

  3. Toxic Load

  4. Sleep

  5. Physical Movement

An honest assessment of the last 6 years tells me that I was only partially addressing #1 and #3 and yet still experienced what felt like miraculous healing. I have to ask: What more can I do for myself before I add prescription drugs to my lifestyle? There's so much room for improvement.

By the way, all of the five healthy lifestyle categories above are specifically mentioned on mainstream Lupus sites as Lupus triggers:

  1. Poor Nutrition

  2. Stress

  3. Exposure to Toxins

  4. Poor Sleep Habits

  5. Sedentary Lifestyle

It is quite exciting to me to see that each of these categories has a corresponding natural solution! If I cannot eliminate my Lupus, I can surely make giant strides in managing it. 

BUT CAN AUTOIMMUNE DISEASE BE CURED?

I don't know. But I've seen plenty of evidence that people have at least been able to fully control their symptoms (meaning they have zero). I have read many accounts of people overcoming life threatening disease with only the changes that I have made. Cancers killed. Diabetes reversed. Rheumatoid Arthritis eliminated. People leaving wheelchairs behind. Very sick children becoming well again. Once I started paying attention, I realized that there is a large body of evidence suggesting that it is possible.

Am I crazy? Well, if I am, I'm certainly in good company...

  • Dr. Amy Myers is one resource I have been turning to lately. She is one of many functional medicine physicians out there who are successfully treating people with autoimmune disease. She says:

"In conventional medicine, the belief is that once you have an autoimmune condition, there’s nothing you can do to reverse it, only ways to manage the symptoms. Managing the symptoms typically involves harsh medications that are aimed at suppressing your immune system. While these medications can be effective at reducing some of the symptoms of the disease, since they suppress the entire immune system, they are not without many unwanted side effects such as fatigue, weight gain, depression, increased infection rates and even cancer.

In contrast, functional medicine sees the body as a whole and works on the principle that the health of one system impacts the health and function of the others. Instead of focusing on disease symptom management, we focus on supporting and strengthening the immune system by getting to the root of why the immune system went rogue in the first place. While there is no known cure for autoimmune disease, I believe that there are five key elements that are at the root of all autoimmune conditions. In my functional medicine practice I have been able to successfully help hundreds of patients lower and reverse antibodies, get off their harsh medications, and become symptom free."

THIS IS NOT A FAD

Healthy living is not a fad. It is a response to a culture that has been consistently deviating from a biologically appropriate course of overall health care. I am so glad to see a growing body of professionals who are committed to restoring what has been lost and embracing the best of what is new.

For those of you new to this journey, here are some of my favorite resources. There are more... so many more... but diving in to even one of these will keep you occupied and inspired for a long, long time. 

There are so many more resources I want to share but I've already dropped enough links to send you down the wellness rabbit hole for a year!

I will continue to share my journey with you on these pages and on social media. Blogging has always been an amazing source of support and accountability in other areas of my life... and now I know will continue to be that blessing for my short and long term health. 

I am so glad to have you with me! My dream is to be able to enjoy the sunshine again without triggering sickness. What is your dream?

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